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Women and HIV: Invisible No Longer


Our work with the Sophia Forum on taking action together to shine a spotlight on the needs women affected by HIV.

Why it’s important to focus on women and HIV

Around a third of people living with HIV in the UK are women, and a quarter of all new HIV diagnoses are in women. Yet women living with and affected by HIV have been mainly invisible in the narrative and response to HIV in the UK.

We know little about what it means to be a women in the UK living with or at risk of HIV. We don’t know enough about what women’s needs are or what interventions are in place to meet these needs.

But we do know that women are not seen as a 'key target' for HIV interventions. This must change.

What we’re doing

Women and HIV: Invisible No Longer’ is a one-year project led by Sophia Forum and Terrence Higgins Trust which aims to shine a spotlight on women. It is drawing on existing evidence and generating new data to provide a comprehensive overview of the situation for women in the UK living with or vulnerable to acquiring HIV.

The project is focused on all women including trans women. It focuses on women of any sexuality, any ethnicity, whether they do or do not have children, or are pregnant.

The project will conclude in spring 2018 with a report setting out clear recommendations for policy and service development, and together we’ll host a conference that will bring together women living with and affected by HIV and key decision makers, to push for change and ensure that women’s needs are fully met in the response to HIV.

The project is co-produced with women living with and affected by HIV and will draw on their experiences to understand what HIV means for women.

Together we’re taking action, and you can too. If you are a women living with or affected by HIV and would like to be involved in this project, please contact Debbie on research@tht.org.uk.

people campaigning

Our campaigns

Take action now to change sexual health in Great Britain