Stigma is when a negative label is attached to an aspect of a person which is wrongly seen as disgraceful or unacceptable.
For example, there is a stigma attached to having a mental illness, which can make it hard for people to ask for help and support if they are experiencing mental health problems.
HIV is another medical condition which is stigmatised, usually because people lack information about it or they make moral judgements about how someone has contracted HIV. This is because HIV is mainly transmitted through sex and can be linked to activities such as injecting drugs.
Stigma is often borne out of fear and can take many forms including hostility, physical or verbal abuse, or someone being avoided or excluded from activities they used to take part in.
People can experience stigma in any area of their life - within your relationship, family, at work or at places where you socialise such as church, for example. If you experience harassment or abuse of any kind it is important to report this to the police or to contact a domestic violence organisation like Refuge.
You might find that you stigmatise yourself for having HIV. This can take the form of thinking you are somehow 'dirty' or 'shameful' and that you don’t deserve to have a partner, children, friends or work. Unfortunately this is a common reaction but you may need help to overcome it and move forward with your life. Talking to someone like a counsellor or a Health Trainer can help, or you may want to join a group for people living with HIV.
People living with HIV are protected by the Equality Act 2010 from the time they are diagnosed. This makes it illegal for employers to discriminate against you on grounds of disability.
If you feel you have been stigmatised when you have used a public service, such as healthcare, you can report this or make a complaint. Your local Patient Advice and Liaison Service (PALS) can help you to address what has happened.
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This article was last reviewed on 31/10/2012 by T Kelaart
Date due for the next review: 31/10/2014
Content Author: K Wells
Current Owner: Health Promotion
More information:
HIV and Stigma, NAM (2012)
Stigma begins at home, NAM (2009)
Disability rights, DirectGov
What is PALS?, NHS Patient Advice and Liaison Service
Jason talks about his experience with HIV
Register now
Body and Soul
Mambo
George House Trust
http://www.hiv-druginteractions.org/
GMFA - Gay Men Fighting AIDS
NAM
Living Wel
Naz Project
CAB - Citizens Advice Bureau
Work Life - Your Work, Your Health, Your Life