Following the closure of the Macfarlane Trust, we're supporting those living with and affected by HIV as a result of the Contaminated Blood Scandal.
This is inclusive of those who were directly infected with HIV because of blood products used by the National Health Service to treat people with haemophilia or other bleeding disorders, any individuals who were infected with HIV by those directly infected because of those blood products used to treat haemophilia or other bleeding disorders, plus their partners, parents, carers, children and dependents.
Presently, we're offering the following:
We provide practical information, emotional support and help with form filling on a number of matters such as regional Inflected Blood Support Scheme applications, and signposting/referral into local services to meet your current needs.
Counselling and psychotherapy
We can provide access to a free talking therapies service. Counselling support includes dealing with the trauma of past events and arising out of the current Infected Blood Public Inquiry. Initially you will be provided with up to 24 sessions of therapy.
Advice and general support
Our telephone helpline THT Direct offers expert practical support for living with HIV including welfare and benefits advice. We offer a separate phone number just for the Macfarlane community. This is so you won’t have to explain to the person who answers your call about infected blood products and they can offer you the right advice and support. The number is 0808 802 0088. The call is free from all UK landlines and most major mobile networks, and it won’t appear on your telephone bill.
Our well-established and successful work and skills programme, available online, can assist with gaining new skills and help returning to work or finding a new direction after a period of ill-health.
My Community Forum is a platform that can connect you with the UK’s largest community network for people living with HIV.
Engaging former Macfarlane Trust beneficiaries
We're engaging and working with our service users to develop services that are designed for and led by you. This is being done via the Service Panel.
In addition, the work we do relating to the Infected Blood Inquiry, Sir Robert Francis QC's independent study looking at options for a framework for compensation for the victims of the infected blood tragedy and the All-Party Parliamentary Group on Haemophilia and Contaminated Blood is done in collaboration with the Advocacy and Public Affairs Panel made up of former Macfarlane Trust beneficiaries.
If you'd like to join either panel or our quarterly Zoom conversation please contact us using the details below.
Raising the voice of survivors
Terrence Higgins Trust is supporting those living with and affected by HIV as a result of the Contaminated Blood Scandal. During the 1970s and 1980s, blood products infected with HIV and hepatitis C were given to people living with haemophilia and other blood disorders. Thousands of lives were lost as a result and people continue to be impacted today.
Through our Last Chance for Justice series of blogs, we aim to amplify the experiences of a group of people who are less known but are very much part of UK HIV advocacy:
Justice for survivors
The Government has announced (25 March 2021) its intention to appoint an independent reviewer looking at a framework for compensation for those infected and affected as part of the Contaminated Blood Scandal. This is separate to the ongoing public inquiry into the scandal where people with haemophilia were infected with HIV and/or hepatitis in the 1970s and 80s.
Compensation has never been paid to those infected or affected by contaminated blood products. Support payments have been made to survivors living with life-altering conditions but there is little consistency in sums provided across England, Wales, Scotland and Northern Ireland.